Showing posts with label research. Show all posts
Showing posts with label research. Show all posts

Monday, December 2, 2013

Back to the days of "normal"



     Back in the day, I scrambled around like a chicken with my head cut off and I heard time and time again "SLOW DOWN!"  There wasn't a person I wouldn't leave in my dust and I loved every single minute of it. The thing is, I've always been a "hurry up and wait" kind of  girl. The faster I would go, the sooner I would get there. 

    However, now with footdrop there have been many times that my brain says run but the message is sent by pony express.  The end result is my brain getting there about one second before my body and that can end in disaster.  I'm considering wearing my bike helmet 24/7:)




     My reasons for riding in the Bike-To-The-Bay are several.  One reason of course is to take that leap of faith that I can do it and encourage others to do the same.  Secondly, I want to raise awareness about this devastating disease that impacts the lives of so many.  But most importantly, the money raised from this event is used not only to aid those people right in our community who need financial assistance to control this disease, but to fund research to end it all together.

     Thanks to all of the generous donations, we now have eleven drugs available to slow down the progression, and though there is still no cure they are so close to a breakthrough for myelin repair which could potentially take people like me back to the days of "normal". I won't give up because I know it will happen!  I have total confidence that one day I will hear those words again "SLOW DOWN!"  Until then I'll just keep moving:)  Who's with me?!?!

Have a great day!

Christine:)

   

Friday, November 8, 2013

The files of my "myelin challenged" brain






   My brain and body don't always communicate like they're supposed to; I blame the loss of myelin for most of my craziness, though the thinking part is still intact.  I don't want to point the finger but that's why God gave us a pointer finger right... to point it:)  Life may be challenging, but I refuse to let it take me down, so I need a strategy.

     The way most people go through life trying to put all of their ducks in a row, I try to do the same with my thoughts.  I decided I needed a file cabinet to store all of the thoughts that help me stay positive  If you get a minute to check out my Pinterest boards you'll see just what makes me tick.

     On my boards I have nothing informational, educational or any useful household tips.  I simply use this as a space to store all the things that make sense out of life for me.  I've spent a lot of time searching for inspirational thoughts that give me hope, images that make me smile, and jokes that simply make me laugh out loud.




     Whenever I have a moment that I question "why", I go to my boards and say  "oh yeah, now I Remember!  It's amazing how the things that matter the most can get buried by things that aren't important.  Check it out and see if it doesn't put a smile on your face as well!

Have a great weekend!

Christine:)